Showing posts with label Dystonia. Show all posts
Showing posts with label Dystonia. Show all posts

Tuesday, April 11, 2017

Shakey-speare: Parkinson's Awareness Month Meets Poetry Month

Long-time friends of this blog (both of them) are all too aware that April is both Parkinson's Disease Awareness Month and Poetry Month. I like to celebrate this cosmic coincidence by mashing up two things that go together like Brussels sprouts and ice cream, namely, PD and Poetry. How? Easy! By  penning, or, more accurately, keyboarding, a Pd poem. Still with me? Good. Here goes...

"I've never seen a Parkie Cow..." No that won't do... "A parkinsonian lad, name of Tucker, was one crazy, tough little ... " no, better not go there...  "Roses are red, Parkinson's shakey, when I'm dyskinetic, my movement is snakey..." no, no!..

OK, I think I got it...











Saturday, March 31, 2012

Coming Soon to Anchorage, Deep Brain Stimulation Symposium

Medtronic and Swedish Hospital are teaming up to do a blockbuster presentation on Deep Brain Stimulation a surgical procedure that can have significantly beneficial results for people with Parkinson's Disease as well as other brain maladies, including essential tremor and depression. The presentation will be called Diagnosis, Management and Surgical Therapies for Essential Tremor, Parkinson's Disease and Dystonia. Speakers will include

•Jennifer Witt, MD Medical Director, Division of Movement Disorders, Swedish Neuroscience Specialists

•Peter Nora, MD Medical Director, DBS Program, Swedish Neuroscience Specialists

•Peggy O'Neil Shortt, ARNP DBS Program Manager, Swedish Neuroscience Specialists
The event is to take place Thursday, May 17, 2012, 11:00 a.m. – 2:00 p.m. Registration opens at 10:30 a.m.
It will be held at
Anchorage Senior Center
1300 East 19th Avenue
Anchorage, Alaska 99501

*Pre-registration is required for this FREE event. Lunch is provided.

To register, please contact Keely Dailey:
425-213-2147 or keely.dailey@medtronic.com
Bring your best DBS questions. These people have been at this for some time now, and should have answers.

Friday, August 28, 2009

Build Your Parkinson's word Power, part 3

One of the overlooked symptoms of Parkinson's disease is the appearance of new and imposing words in the daily life of the patient. Today we return to the great big world of great big Parkinson's words. Let's start with an obscure but compelling one: Akathisia.

What the heck is akathisia? It is a disorder that causes one to feel restless, to have an inexplicable desire to get a move on, to be, in the words of Steve Martin "A ramblin' guy". This just another example of the perverse nature of Parkinson's Disease: Strip a person of the ability to move, and then inflict restlessness on the poor soul. With Parkinson's you'd like to ramble, but you can't because you're frozen, and besides, you might fall down.

Which brings us to postural instability. This means you have difficulty balancing. Postural instability is an example of medical science taking something for which there is a perfectly serviceable phrase, impaired balance, and replacing it with something that has a more cerebral and clinical ring. What can we do about this? Learn from it! When the bank calls to tell you that your last few checks have bounced, don't say your bank book is badly balanced, say it is a victim of postural instability.

Another Parkinsonian condition that can interfere with the need to ramble is dystonia. Dystonia, the involuntary contraction and cramping of a muscle is a disease all in itself. But in Parkinson's it's just one of many miseries this hard workin' disease inflicts. Examples of dystonia might include painful curling of the fingers or toes. Dystonia can sometimes be held at bay with botox, so if you are going to catch it, try to get it where botox injections will leave you with a younger, less lined look. Just because you have PD doesn't mean you can let yourself go to hell.

Our final term for the day is multiple personality disorder. This is not caused by Parkinson's, but is instead a description of it. Parkinson's can progress slowly or quickly, can cause involuntary movement like tremor, as well as paralysis, and where other diseases are content to have one main symptom, Parkinson's can manifest in many ways. It's just a shame that with all those personalities, it couldn't have come up with at least one likeable one.

Note: Installment 1 of this series can be found here, and number 2 of this series can be found here.