Here is a link to a story about my struggle to draw with Parkinson's Disease. the story is from "The Daily Cartoonist" a Web journal concerning the world of professional cartooning. It was occasioned by the release of the documentary "Matters of Mind, My Parkinson's" which follows three families and their efforts to cope with PD. The show is part of the PBS Independent Lens series, and will be broadcast nation-wide this coming Monday, April 8th. You can find the broadcast time in your area by checking the listing in your local PBS station's Web site. You should also be able to stream the film at your leisure following the broadcast through the PBS app which you can download here.
Friday, April 5, 2024
Sunday, March 3, 2024
Matter of Mind, My Parkinson's, PBS Looks at PD and PD-S
Thursday, January 11, 2024
PDS on PBS: Matters of Mind, My Parkinson's
Monday, June 12, 2023
Sunday, June 19, 2022
Wednesday, March 30, 2022
Saturday, January 8, 2022
Caregiving, Caregetting: New Post on the Northwest Parkinson's Disease Foudation Community Blog
Caregiving is well-trodden terrain in Parkinson's circles, but what of the reciprocal practice of caregetting? It is a critical skill that doesn't get the same attention. Read some caregetting tips here.
Saturday, October 2, 2021
New Post on the NWPF Site "What I Like About Parkinson's Disease"
Staying positive can be tough with Parkinson's Disease (See what I mean? that in itself is a negative statement.) No problem. I posted a list of the things here I like about PD on the Northwest Parkinson's Disease Foundation Community blog. you are welcome to crib from it, if you are feeling negative.
"Causes spontaneous combustion in most patients” is not a commonly cited problem. Way to go, Parkinson’s.
Tuesday, September 21, 2021
Parkinson's Is Not Witchcraft, Q & A With Uganda's Hannington Kabugo
Hannington Kabugo, 36 became a Parkinson's advocate after his mother died with Parkinson's disease over a decade ago. A resident of Uganda, where he lives outside of the capital of Kampala he made it his mission to take on Parkinson's Disease after seeing how his mother was stigmatized when she developed PD. "Apart from PD advocacy that I do with a lot of passion and love in memory of my mom who suffered because she had Parkinson's, I am a food scientist and work as a health inspector in the capital city authority of Uganda as a food and beverage supervisor." As the lone PD advocate in a country with an estimated population of over 45 million, Hannington js pioneering the struggle against PD in the developing World. This interview was conducted via the Messenger app, It has been lightly edited for clarity.
Wednesday, September 8, 2021
The Parkinson's Games, Billed as the Parkinson's Olympics, Scheduled for the Netherlands 2022
In a development that came as a complete surprise to me, I got an email from a promoter of something called the Parkinson's Games, taking place in the Netherlands next year. It bills itself as the Olympics of Parkinson's Disease. That's the 50 yard festination and the dyskinetic Decathalon? No, it will be made up of events like Badminton, ping-pong, basketball (3x3), boxing, curling, darts, duathlon,
golf, bocce, spinning, squash, tennis, football (soccer) and
swimming, according to its Web Site. The event is set for August, 2022.
While the organizers seem to have plenty of ambition, they are a bit short on actual competitors. The promoter asked me if I could think of just one person who would consider taking part. They are definitely scouring the planet for participants, as shown by the fact that they went to the length of contacting me.
I asked about the qualifications an athlete would be required to have and was told that a note from a "physio/ neuro/ nurse stating they can partake" is all that is required to qualify.
It occurred to me this might be a scam, but the Web Site and other documentation seem real enough. I did a little digging and am satisfied this is a bona fide, grass roots Parkinson's production So I bring it to your attention, as a possible opportunity to participate in an awareness-raising activity regarding PD and exercise, and your best opportunity to medal in an international athletic competition. You can learn more and register for the event at the Web site. The games are afoot!