Thank you for giving us such good ideas. I think people who are not familiar with our diseases have a hard time understanding that we can move in a variety of ways, though going straight forward is slow and imbalanced! Crazy, but with a different neurological impetus, things work more smoothly. Seems crazy to others, but not those among us. Even with my Atypical Parkinsonian disease there are similarities in these areas. Thanks so much!
I'm tempted to call this disease "whimsical" but it is like being at the whim of some devil with a perverse sense of humor- for example, what's up with that walking backwards shtick? But if one can retain a sense of the whimsical and of the absurd, one will fare better over the years IMHO.
4 comments:
Peter, You're my new role model for when my body doesn't behave the way it should. This 'poster' is incredible.
Steve, God forbid a) That your body ever misbehave and b) That I should be a role model. But thanks!
Peter
Thank you for giving us such good ideas. I think people who are not familiar with our diseases have a hard time understanding that we can move in a variety of ways, though going straight forward is slow and imbalanced! Crazy, but with a different neurological impetus, things work more smoothly. Seems crazy to others, but not those among us. Even with my Atypical Parkinsonian disease there are similarities in these areas. Thanks so much!
I'm tempted to call this disease "whimsical" but it is like being at the whim of some devil with a perverse sense of humor- for example, what's up with that walking backwards shtick? But if one can retain a sense of the whimsical and of the absurd, one will fare better over the years IMHO.
Whimsically,
Peter
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