Monday, June 6, 2016

Once Again, Off and On Picked as a Best Parkinson's Blog for 2016 (Along with 14 others)

The invisible hand of Healthline, a San Francisco-based Web site has ransacked the darkest corners of the internet on a desperate quest to find the best blogs on Parkinson's. When every sack had been ran, it turned out that, once again Off and On was chosen for these particular laurels. To the winners go cash prizes of...  heh, just kidding. The winners get this nifty graphic "badge" to append to their blog in a suitable spot, and a temporary vacation from that vexing question "Why am I doing this, anyway?"

The Website posted about the criteria for selection, and had this to say about the winners

 "We’ve carefully selected these blogs because they are actively working to educate, inspire, and empower their readers with frequent updates and high quality information. If you would like to tell us about a blog, nominate them by emailing us at bestblogs@healthline.com!"

 Here is what they had to say about "Off and On"


"...learn about symptoms, download charts that can help you manage your medications, and much more. Because the blog’s been active since 2008, and because the writing is so entertaining, you could literally spend hours here."

Thanks to Healthline, and to the readers of this blog, without whom the question "Why am I doing this anyway?" would be way harder to answer.

Thursday, June 2, 2016

Parkinson's Activities for Anchorage-Area Persons of the Parkinson's Persuasion

So what will Anchorage People-with-Parkinson's-about-town be doing this month? (aside from tremoring, festinating, and taking pills, I mean.) Myself, I  hope to be swanning around with the in crowd  attending the Parkinson's Telehealth broadcast. The subject is "Thermography, non-invasive and comfortable imaging for detection of breast Cancer for PD, Caregivers, and more" The event is June 13th, 2016, at 1:00pm. To find the Anchorage area broadcast of this live and interactive hour-long session,  head to the Piper Street side of the Providence Hospital mega-plex, go to the second floor, walk down the lonnnnnnnng hall that stretches South from the cafe and look for room 2401 pretty much at the end of the hall on your right. Then rest up for our next fabulous event, the Summer Picnic Potluck at my house, 9601 Elmore Road (Directions: Beware of construction on Abbott Road. It's best to take Elmore South to the lighted intersection with Abbott. Continue South through the intersection and look for  9601 Elmore about a quarter mile later, roughly halfway up a small hill, on your left. Our house is directly after a largeish house with a chain link fence around the front yard. Come up our semi-long driveway and you're there!) The picnic will take the place of our regular meeting June 18th at 3:30. We'll have cold cuts, paper plates and utensils, you bring whatever you think will taste good on a sunny afternoon in early Summer.
I hope you all are enjoying this fine weather, and that none of you spontaneously combust in the heat!
Sweatily,
Peter

Thursday, May 5, 2016

Parkinson's Report for Anchorage and Environs, May 2016

Hello friends, Wondering what we're going to do this month to remind ourselves that we have a rare and debilitating disease? That's the spirit! You can show your contempt for this sorry, so-called pathetic excuse for a malady by attending the Telehealth seminar on Monday, May 9th, at 1:00. The topic this time is the World Parkinson's Conference, to be held in Portland, Oregon this September.  They will address registration, accommodations, sessions and travel. To find the Anchorage telehealth interactive broadcast, proceed with all deliberate speed to Providence Hospital oncology wing on Piper St. ( Go to the second floor, walk down the lonnnnnnnng hall that stretches South from the cafe and look for room 2401 pretty much at the end of the hall on your right.
The monthly support group meeting will be held May 21st, at 3:30 in the luxurious fifth floor lounge of the Anchorage Pioneer Home. It will probably be an "open mic" session for you to air your PD questions and concerns. If nobody has any questions or concerns about the disease we will take up the topic of "If we're not worried about this. then why do we have a support group anyway?"
​Thank you for your attention, now  please return to what you were doing before I so rudely interrupted,
With ceremony, ruffles and flourishes, this is your President-Pro-Tem-For-Life, Generalissimo Pedro Del Dunlap-Shohl, signing off.

Thursday, April 28, 2016

Another Parkinson's Disease Quiz! (Originally Appeared as a Post For the Northwest Parkinson's Foundation.)

I just ran across this forerunner of the PD Trivia quiz. I wrote it some time ago for the NWPF, and decided it is worth republishing here. Beware: it has a bit of attitude. But at least it's short.

QUIZ: How well do you know your Parkinson’s Disease?

To complete the quiz, you’ll need a pen, a pencil, or a stick to mark your answers; an encyclopedic knowledge of Parkinson’s disease, or access to a reliable search engine; a dogged perseverance; a sense of humor. Choose as many of the answers as seem true to you.

1.) Among the earliest signs of Parkinson’s Disease are:

A.) A shaking of an extremity that lessens when moving
B.) The sudden appearance of strange new vocabulary, with foreign-sounding words like “Dystonia” and “Festination”
C.) Constipation

(Answer:  C. Constipation. People can have this as a PD symptom a decade before other signs emerge.)

By the time a diagnosis of Parkinson’s Disease is made, a typical Parkinson’s patient:

A.) Has been misdiagnosed with so many other diseases that denial seems not only reasonable, but downright sensible.
B.) Has lost the use of as much as 80% of the cells that make dopamine in the substantia nigra
C.) Is ready to slug their doctor

(Answer: B. Cell loss. This is a tough one, but as only some patients suffer frequent misdiagnoses (as many as 30% of those who don’t see a movement disorders neurologist) and only a few feel like slugging their doctor, I’m sticking with B.

3.) Parkinson’s researchers divide symptoms of the disease into the following categories:

A.) motor and non-motor
B.) serious and frivolous
C.) sinister and hilarious

(Answer: A. Motor and non-motor. Motor symptoms are those like tremor or stiffness that affect movement. Non-motor symptoms involve other aspects such as emotion, with the onset of depression, or cognition, with the loss of ability to cope with complexity. And if you answered B or C, shame on you, cynic.)

4.) The number of people diagnosed with Parkinson’s in the United States is:

A.) Around a million
B.) Way, way too many
C.) Not getting any smaller, that’s for sure.

(Answer A, B, or C. Any of these is a defensible answer. The problem is that with the slipperiness of a PD diagnosis, and the consequent number of misdiagnoses, we really don’t know the exact number. A million seems to be the most common number tossed around in articles on PD. Answer B. way too many, goes without saying. C, not getting any smaller, is unfortunate but true as the baby boom generation is now entering its prime years for diagnosis.

5.) The most effective underutilized measure to cope with Parkinson’s Disease is:

A.) Exercise
B.) Exercise
C.) Exercise

(Answer: You can’t go wrong with exercise. Nutshell version: regular exercise can help with balance, mood, cognition,  and can very likely moderate the progression of the disease. Studies have found that the earlier regular exercise is implemented, the more gradual the patient will decline, compared with those that cannot or will not exercise. Also it is inexpensive, has no side-effects when properly done, and can actually be fun.

BONUS QUESTION: Which of these dictators suffered from Parkinson’s Disease?

A.) Adolph Hitler
B.) Ferdinand Franco
C.) Mao Tse-Tung

(Answer: All three! Maybe the urge to conquer the world should be considered a non-motor symptom of PD.)

Interpreting your score: 4-5 correct: PD Maven, put yourself in charge of your support group. 2-3 correct: PD Journeyman, put yourself in charge of snacks for your support group.  0-1 correct: PD Pre-K, Congratulations, you know as much about PD as the average American! Disagree with an answer or the scoring of questions? Comments are welcome below.

Sunday, March 20, 2016

Parkinson's Trivia: A PD Activity You Can Do With Your Support Groiup

The question comes up every month. What to do for the support group? I've hit up the voice pathologist three times now, the dietitian twice, and the kindly movement disorders doctor twice, too. I need something fresh, that hasn't been  done to death. Something to get the group interacting with each other. After beating my defective brain out, it came to to me: Parkinson's trivia!

I set up a few categories, did some light research on the Web, and, hey, presto! Instant meeting. You're welcome. Here are the questions and answers.

Category 1: Well-Known PWP

1.) This Man was the subject of a bio pic starring Will Smith.

Answer: Muhammad Ali

2.) This British actor, who starred in 1960’s films like “Monte Carlo or Bust” was noted for his roles as an upper class cad.  Answer: Terry Thomas

3.) Possibly the worst person in history, ___________ was a frustrated artist who rose to power in the 1930’s in Germany.    Answer: Adolph Hitler

4.) This dictator was  the subject of as running joke on Saturday Night Live “_________ ______ _________is still dead.”     Answer Generalissimo Francisco Franco

5.) This dictator was known for his “Little Red Book”  A: Mao Tse Tung

6.) This Photographer was noted for her Depression-era images During her unique career, __________________ was torpedoed in the Mediterranean, strafed by the Luftwaffe, stranded on an Arctic island, bombarded in Moscow, and pulled out of the Chesapeake when her chopper crashed. She was the first Western photographer to document Soviet industry after the revolution, to create a travelogue of Czechoslovakia and other Balkan states just before Hitler moved in to ignite World War II, and was stationed in Moscow just before Germany bombed its former ally.    A: Margaret Bourke-White

7.) Author and disillusioned Communist, _________ _______ is most famous for his novel attacking Stalin's regime, "Darkness at Noon", but wrote on Science, Judaism, and the paranormal as well.
A: Arthur Koestler 

9.) Surrealist Painter, known for walking his anteater on the streets of Paris. A: Salvador Dali

10.) This evangelist preacher was known for his association with presidents like Nixon and Johnson.  A: Billy Graham

11.) This man was the leader of one of the world’s biggest Christian denomionations  A: Pope John Paul

!2.) Champion American cyclist started a foundation to inspire and inform People with Parkinson’s          A: Davis Phinney

13. A neurologist, and the first person to run a four-minute mile  A: Roger Bannister

14,) American Writer and Journalist, formerly of  The New Republic And Slate A: Michael Kinsley

15,) American actor who specialized in Macabre, creepy roles   A: Vincent Price

16.) One pf the great singers to come out of Rock and Roll, this 11- time Grammy winner later went on to sing standards and perform in Gilbert and Sullivan on Broadway    A: Linda Ronstadt

17.) This Country Music legend was known as “The Man In Black”.  A: Johnny Cash

18.)English actor who made his reputation as a tough guy in movies like “Mona Lisa” and “Who killed Roger Rabbit?”    A: Bob Hoskins

Category 2: Symptoms 

1.) PD symptoms involving the ability to move are called “________ Symptoms”
A: Motor

2.) PD symptoms that do not involve moving are called"__________ symptoms”  A: non-motor

3.) The loss of this sense can precede onset of motor symptoms by a decade.  A: Smell

4.) Diagnosis of PD depends on what three symptoms?   A: Tremor, slowness, stiffness

5.) REM  ________ disturbance can be one of the early symptoms of PD  A: sleep

6.)  By the time motor symptoms appear, PD Patients have lost  _______ percent of the dopamine producing neurons in the deep part of their brains   A: 65-80

7.) Involuntary dance-like movements that some people with PD exhibit are not a symptom of the disease, but a side-effect of what medication?  A: Sinemet

8.) A soft, hoarse ____________ is a frequent symptom of PD. A: Voice

9.) The tiny handwriting associated with PD is called _______________.   A.) micrographia

10.)  The parkisonian gait, characterized by a rapid shuffling of the feet is called __________   A: festination.

11.)  A symptom that appears often before the onset of motor symptoms is _____________, which can be treated with prunes.  A: constipation

12.) ________________ are a non-motor symptom that involves seeing things that don’t exist. It  is more common in older patients, or those with dementia than those who do not have dementia.  A: hallucinations

13.) “Bradykinesia” means  _______________  A: slow movement

14.) A resting remor” characteristic of PD diminishes when muscles are  ____________   A:  moving.

15.)  “The Pull Test”  a moderately  forceful backwards tug is performed by doctors to assess _______________   A: balance problems

16.) It is difficult to read the emotions of many PWP because of  “Facial ___________”                  A: masking

17.) The often painful involuntary tensing of  muscles common in PD is known as _________    A: dystonia

18.) Reduced swallowing in PD leads to _______________   A: drooling

Category three: Treatment

1.) Sinemet known as the  “gold Standard” for PD treatment is a combination of what two substances?    A: levodopa and carbidopa

2.)  Carbidopa is added to levodopa to prevent patients from __________.  A: vomiting

3.) Drugs like Requip and Mirapex are drugs that act as replacements or helpers to dopamine in the brain are called “dopamine ______________   A: agonists

4.) Carbidopa And Levodopa, or “Sinemet” was first developed in what decade?  A.) the 1960s

5.)  Obsessive gambling, shopping or sexual activity have been unwanted side-effects most associated with what type of PD drugs? ______________   A: dopamine agonists

6.) DBS is an acronym for what?  A: Deep Brain Stimulation

7.) Exercise, when done properly can reduce  symptoms by as much as __________     A: 35%

8.) Before the introduction of Sinemet, A patient lived _________ years after diagnosis with PD  A: 10-15

9.)  With Sinemet a person can reasonably hope for a  _______ life span.    A.) Full

10.) Disqualifications for Deep Brain Stimulations include __________ response to Levodopa.  A: poor

11.) Loss of balance can be countered by ___________ A; exercise like  Tai Chi and Yoga

12.) Phasing in a new medication by slowly increasing the dosage over an extended time is called  ___________    A: Titrating

14.) The drugs known as MOA-B inhibitors block a chemical in the brain that ________________  dopamine in the brain     A:  breaks down

15.) What is the best form of exercise form of exercise for PD?   A: Whatever you will do regularly and stick with.

16. If you suffer from, and are not treated for ______________ , this non-motor symptom will make it difficult to  effectively treat the other symptoms of PD   A: depression

17.) The earlier one intervenes in treating PD, with medicine or exercise, the better _____________  A: one will handle the disease over time

Tuesday, March 15, 2016

Library Journal posts starred review of My Degeneration, A Journey through Parkinson's Disease

At Library Journal, they know books. So it has to be a good thing that they gave a starred review to My Degeneration, right? Here is where I would ordinarily pivot and confound reader expectations by arguing otherwise. But what author in his right mind would argue with this? "Dunlap-Shohl’s journey of setbacks and triumphs contextualizes key disease information within a narrative suffused with emotion and wry humor. PD patients, families, and caregivers will find it valuable; those who enjoy memoirs will appreciate its compelling real-life drama." Not me. 

Here is the review.

Friday, March 11, 2016

March 19 Meeting Agenda- Parkinson's Trivia!

Hola Amigos!  I'm back from the Southern hemisphere, re-energized, and and ready to ...uh, take a little nap. But before I  do,   ...ZZZZZzzzzzzz...   oops, sorry,  where  was I? Oh yeah, South America, where they are borrowing Summer from us, but plan to return it by June. What do we do in the meantime? Let's put on a meeting! Let me check the big board, campers, for the date of the third Saturday in March, ...and it looks like March 19, 3:30 at the Pioneer Home is the date, time and place. We will play Parkinson's Trivia, so don't miss this bang-up opportunity to strut your PD IQ! And, looking ahead,  mark your calendars for the May meeting, we'll have a guest from the group PD advocates. Their mission is to get good information about Parkinson’s care and treatment into the hands of PWP, and to work with individuals with Parkinson's anywhere in the country to help them with any PD-related issues. It sounded too good to be true, but I checked them out and they come with high recommendations from people who work with them. 
 
That's all for now, see you the 19th!
Peter

Wednesday, February 3, 2016

February and Parkinson's in Southcentral Alaska

Hello Friends, it's time once again to take keyboard in hand and dish the PD scoop for the month. To lead with good news, it's NO LONGER JANUARY!
I think we can all agree that's a good thing. See? we're making progress! So what's in store for February?  Well, as usual there will be a Telehealth interactive broadcast on February 8th 2016 at 1PM (To find the Alaska meeting, proceed with all deliberate speed to Providence Hospital oncology wing on Piper St. ( Go to the second floor, walk down the lonnnnnnnng hall that stretches South from the cafe and look for room 2401 pretty much at the end of the hall on your right.) The speaker will be Sabina Gonder CHC Topics: Sleep Health and Hygiene. Learn why getting enough sleep is so important to your overall health, and steps to get more sleep every night.

Our regular support group meeting is set for February 20th. I will have to miss the  meeting because I will be in South America, (really!) but there is no reason that everyone else should not show up, talk with one another, offer each other support and, most important, plot the coup that ousts me as leader while I'm not there to cheer it on. 
Adios, Amigos!

Pedro

Tuesday, January 26, 2016

Non-Motor symptoms of Parkinson's Disease, and Things That Seem to Help for Most of Them

Here is a modified text of a presentation I made to our support group’s January meeting. This is a huge topic, and the attempt here is to provide an overview. Thanks to the Parkinson's Disease Foundation's website, which I relied on heavily in putting this together.



Everybody knows Parkinson’s Disease is an affliction of the brain which interferes with “motor” or “movement” abilities, right? The truth is actually more complicated. PD also packs a number of potent  non-motor symptoms, affecting the brain and other parts of the body.

The list of non-motor symptoms of PD is as long as it is dispiriting. The Parkinson’s Disease Foundation breaks the non-motor symptoms into two groups “Early” and “Other”. Some non-motor symptoms can pre-date motor problems and diagnosis a decade before motor symptoms show up. Early non-motor symptoms of Parkinson’s include:

• Loss of sense of smell
• Constipation
• Mood disorders (Depression)
• REM behavior disorder (Acting out vivid dreams)
• Orthostatic hypotension (Low blood pressure when standing up, at times resulting in fainting.)

Just for fun, let’s poll the group. Before you were diagnosed, how many had

Smell  disruption/dysfunction?

Constipation?

Depression or apathy?

REM behavior disorder?

Orthostatic hypertension?

(Boy, that was fun. Many hands went up for each symptom)

One or more of these early symptoms is not seen as a a sure sign that a person will develop Parkinson’s, but there is strong correlation, and these frequently signal the eventual onset of Parkinson’s Disease. NB: There is a significant advantage to recognizing PD as early as possible. Studies have found that the earlier a person intervenes in their case of PD with exercise and appropriate treatment, the more gentle the progression of the disease will be.

The Parkinson’s Disease Foundation lists some of the non-motor symptoms on their Website, including the following that can crop up anytime, but not necessarily in every patient with Parkinson’s Disease.

• Sleep disturbances
• Constipation
• Bladder problems (urgency-Must go NOW!)
• Sexual problems erectile dysfunctions
• Excessive saliva (Drooling)
• Weight loss or gain
• Vision and dental problems
• Fatigue and loss of energy
• Depression
• Apathy (not the same as depression.) Apathy a general sense that you haven’t the energy to initiate anything, can’t be bothered.
• Fear and anxiety
• Skin problems
• Cognitive issues, such as memory difficulties, diminished executive function,
( Executive function helps you:
Manage time
Pay attention
Switch focus
Plan and organize
Remember details
Avoid saying or doing the wrong thing
Do things based on your experience) 
executive function deterioration likely linked to the consecutive involvement of other brain regions, such as prefrontal cortex (Owen 2004), hippocampus (Bruck et al. 2004), and amygdala (Ray and Strafella 2012). These data are also supported by preclinical results showing that, in experimental parkinsonian models, the animals are impaired in behavioral tasks mainly mediated by brain areas other than the striatum, such as the hippocampus or the prefrontal cortex, as reported above.

• slowed thinking, confusion and in some cases, dementia
• Medication side effects, such as impulsive behaviors

In addition, I would consider the following as non-motor symptoms as well
• “Parkinson’s smell” a Scottish woman  ascribes a “musky” odor to PD, and was quite accurate when tested on her ability to distinguish garments that had been worn by people who had PD from garments worn by people without Parkinson’s Disease.
• Hallucinations


Much of this seems pretty serious, but it wasn’t until recently that non-motor symptoms were recognized as consequential or given much weight in treatment. The good news is that there are effective therapies for many of these problems.

The following overview is not exhaustive of possible treatments, Rather, it represents what one guy was able to turn up in a hasty afternoon of searching. You should consult your doctor before pursuing changes in treatment.

in 2010 American Academy of Neurology March 15, 2010  issued new guidelines outlining what it says are the most effective treatments for non-motor symptoms common in people with Parkinson’s disease. These include sleep disturbances, fatigue, constipation, and sexual problems, which the AAN says are often unrecognized symptoms.
The guidelines say that:
Erectile dysfunction, can be treated with the drug sildenafil citrate (better known as Viagra).
Constipation can be improved by the drug isosmotic macrogol. (Movicol) ( I should note that before adding more medications to your current list it’s worth trying a high-fiber diet, plenty of water, and/or prunes and/or prune juice. - Peter)
Excessive daytime sleepiness can often be treated with modafinil, (Provigil) which helps people feel more awake. (Or coffee, and green tea, both have caffeine and are loaded with anti-oxidants and other helpful substances, and if I remember right, consumption of both are correlated with a lower incidence of PD in populations this has been studied in -Peter)
Fatigue may be eased by taking the drug methylphenidate.(Ritalin)
Orthostatic Hypotension, According to the Parkinson's Disease Foundation may be treated by the following:

If you can recognize your symptoms and are aware of what makes them worse, you can take steps to reduce and avoid them.

Most important is to avoid dehydration, especially during the months of hot weather.  Ask your doctor to identify the medications you are taking that may lower your blood pressure, and see if a change in dose is indicated.  Avoid abrupt changes in position.

Be aware of behaviors and circumstances that can make orthostatic hypotension worse.
These include the following:
  • dehydration
  • exposure to heat
  • fever
  • prolonged standing
  • vigorous exercise
  • drinking alcohol
  • certain times of day (especially early morning)
  • straining while going to the bathroom
  • changing the position of the body (e.g., standing up)
  • meals high in carbohydrates


So that leaves the following symptoms from our list:
Sleep Disturbances: Some sleep problems can be helped by administering melatonin or clonazepam. I noticed that interruptions of sleep, particularly those associated with the need to urinate decreased greatly after I underwent Deep Brain Stimulation surgery.
Bladder dysfunction: There are various drugs to treat different facets of this problem. Consult your doctor, is my advice. Again, I noticed a substantial improvement in my struggles with this after Deep Brain Stimulation surgery
Excessive saliva (Drooling) treatment: Botox can treat this, or try gum chewing. If you can chew gum and drool at the same time, you’re multi-tasking!
Weight loss or gain: According to the Parkinson’s Disease Foundation, People with PD often lose weight prior to the diagnosis of PD, for a variety of reasons such as loss of smell and taste.  The weight loss usually levels off once people are on appropriate PD medications.  For this reason, ongoing, unexplained weight loss in PD should never be attributed to PD until more serious medical issues such as cancer and depression have been excluded.  If swallowing is contributing to the problem, a speech language pathologist can do a swallowing assessment, especially in advanced Parkinson’s.
For weight gain Parkinson Canada has this advice: “Stringent diets may decrease your energy.  Try to stabilize your weight by eating nutritious meals, controlling portions and being as active as possible. Consult a nutritionist or dietitian to help plan a healthy, gradual weight loss program. Compulsive eating (binge eating) may be a side effect of Parkinson medications. If you are experiencing this behavior, tell your neurologist/doctor.  Often medication can be adjusted which can reduce or control the behavior.”

Vision: The PDF says be aware of how medications affect vision - medications containing levodopa (Sinemet, for example) can improve movement-related symptoms as well as contrast sensitivity while other drugs may exacerbate hallucinations
Have a thorough eye examination
Get two pairs of glasses – one for distance and one for reading – may be better than bifocals, or your ophthalmologist may prescribe prism glasses
Apply warm moist compresses or ointments for eyelid irritation
Use artificial tears to moisten dry eyes
Dental problems Perhaps the simplest intervention is an electric toothbrush, which provides the fine and repetitive motions that protect teeth most effectively.

Depression treatment: Anti-depressants can be effective. Lexapro works for me. Exercise may help with depression.
Apathy: There are no medications proven specifically to help apathy. Overcoming apathy starts with being in the best possible health, and ruling out other causes for feeling sluggish. With your doctor evaluate and optimize your PD medications — better movement may reduce apathy.
Get tested for both depression and apathy — standard rating scales can help you and your doctor find the cause of your mood. If you have depression, get treatment.
Discuss ways to get the most restful sleep possible — sleep difficulties are common with PD, and contribute to fatigue.
Discuss other treatment options — although, as noted above, there are no approved medications to treat apathy, some patients may benefit from cholinesterase inhibitors (rivastigmine, etc.), stimulants, or certain types of antidepressants.

Fear and anxiety: The Veterans Administration says Treatment of Anxiety in PD is the use of Selective serotonin reuptake inhibitors (SSRI) Effective for all types of anxiety including obsessive compulsive disorder Considered first line by most VA physicians May take several weeks to work Start at low dose and increase slowly.

Skin problems: A good summary of skin problems and treatments here.

Cognitive problems: This is a huge topic, so for our purposes its best to refer you here, or here.

Medication Side Effects, such as compulsive behavior: Consult your doctor, reduce or discontinue use.

"Parkinson's smell": So far we know of only one person in the world who can smell PD, and she lives in Perth, Scotland. So let's just not worry about this.

Hallucinations in PD are not well understood. Usually the first thing tried is a reduction in dopamine-precursors (levedopa) or dopamine agonists. But I have read of recent studies that found PD patients who hallucinated without being on medication.

Tuesday, January 5, 2016

Parkinson's events in Anchorage for January

I hesitate to urge my balance-impaired compatriots out on the world's largest ice rink, but you may decide for yourselves between risking a fall and risking cabin fever. Here to help you with that choice are the things that might tempt you to go out.
The Telehealth presentation for January will be broadcast on Monday, January 11 at 1:00 pm on the campus of Providence Hospital. To find the Alaska meeting proceed with all deliberate speed to Providence Hospital oncology wing on Piper St. ( Go to the second floor, walk down the lonnnnnnnng hall that stretches South from the cafe and look for room 2401 pretty much at the end of the hall on your right.) The speakers for this interactive broadcast will be Jessica Yaeger and team, Gentiva Home and Hospice Health Representative, Topics: Hospice.
Myths discussed and questions answered.For more information contact : Parkinson’s Resource Center of Spokane at 509-443-3361 or by email at center@spokaneparkinsons.org  By the way, many of the past teleconferences are archived and you can watch them here http://www.spokaneparkinsons.org/telehealth-video-library/

Our regular support group meeting will be Saturday, January 16th, our topic will be the non-motor symptoms of Parkinson's Disease.
Best wishes to all of you for 2016!