Saturday, February 24, 2018

Can You Spot the Parkie?

One of the three friends depicted below has Parkinson's. Your challenge: Identify the correct skier!

Monday, February 19, 2018

New Installment of the PD Pundit up now


Hey friends, the PD pundit is pontificating on Parkinson's again! You can see the latest installment, the Holy Grail of Parkinson's here

Thursday, February 15, 2018

Support Group Meeting Saturday, February 17: Rock Steady Boxing!

Hello friends, we will have a boffo meeting this Saturday with a presentation on a new Rock Steady Boxing program that is forming in Anchorage This is one of the most  popular PD exercise programs, so it's exciting to have it happening here in Anchorage. See you at 3:30 at the Pioneer Home, This Saturday!

Thursday, January 18, 2018

Support Group Meeting Alert (This is NOT a Drill!)

Hey Everybody, It's a meeting alert! We will have our regularly scheduled meeting this Saturday, January 20th, 3:30 at the usual place, the Pioneer home 5th floor West lounge. We will have a parkinson's pop quiz to start the new year right, so bring your brains, or your gut or whatever you use to do your best thinking. (Magic 8-balls, ok too!)

see you soon!

Peter

Tuesday, January 9, 2018

A few notes on falling


Back when I was first diagnosed with Parkinson's Disease, I had a fear of falling. There were two things I especially did not relish about the idea that it would become a part of my modern lifestyle. #1 was pain, and the possibility of a fall leading to broken bones, leading to becoming bedridden, leading to bedsores, leading to infection, leading to death. #2 The fact that, back then (17 years ago!) there was nothing I could find known to improve falling. As a person with Parkinson's, you were just doomed to fall. Get used to it.

This was very frustrating, and horribly demoralizing. And we now know, not true. Yes, you will fall more if you have PD, but there are now activities that can improve your balance, stopping falls before they happen. I did a two-part infocomic on this topic, you can find the first part here, and the second here. Walk tall, don't fall. That's all.

Friday, December 29, 2017

Coming THURSDAY, January 4th, a Special Edition of the Anchorage Parkinson's Disease Support group: Connie Carpenter Phinney on Care Partnering

We will have a special edition of the Anchorage Parkinson's Disease Support group on THURSDAY, January 4th. Our speaker will be Connie Carpenter Phinney of the Davis Phinney Parkinson's Foundation. Connie has 17 years of experience as a care partner with her husband Davis Phinney. Both Phinneys were champion cyclists ​in the 1980's with Connie winning a Gold Medal at the Los Angeles Olympic Games. According to the entry on her in Wikipedia, she "is an American retired racing cyclist and speed skater who won four medals in World Cycling Championship competitions (both road and track cycling) in the late 1970s and early 1980s. She also won the gold medal in the cycling road race at the 1984 Summer Olympics in Los Angeles,[1] as well as twelve U.S. national championships. She remains the youngest American woman to compete at the Winter Olympics.[2]" Connie will share her experiences and tips for care partners in an hour-long ​presentation that will include time for questions. This special meeting will be at 4:30 on Thursday, January fourth, in our usual meeting place, the Anchorage Pioneer Home, 5th floor West lounge. I hope to see you there!

Peter