Thursday, February 26, 2015

"My Degeneration" a Memoir About Living With Young-Onset Parkinson's Disease

After four years of wandering in the desert, burnt by the Sun, frozen by night, chapped from the wind, infested with sand flies, dazed with heatstroke, faint with hunger, dejected, rejected, demoralized, but nevertheless, oddly optimistic, I seem to have landed a publisher for my graphic-novel style account of my confrontation with young-onset Parkinson's Disease.

The hope is that many who would be intimidated or otherwise disinclined to learn about Parkinson's will find this an alternate way into this complex and destructive disease. I especially wish this to be a comfort to the newly diagnosed, something that can offer credible hope. The initial manuscript has undergone massive renovation to fit comfortably in a series of books that Penn State Press is undertaking on medical comics, created by patients, doctors, nurses etc. on the sensible theory that comics offer a powerful lens to examine the relationships between doctors, patients, disease and how it all plays out in the larger context of community and society.

The plan is to bring out the book, entitled "My Degeneration", this coming fall. Here are a couple of pages. The first is from a section on Parkinson's terminology, the second is from a description of Deep Brain Stimulation, a surgical intervention for Parkinson's Disease as well as several other neurological disorders.

7 comments:

Steve said...

Congratulations Peter! This is great news. Knowing you, I assume the title is a play on "My Generation" and I'd suggest a slight modification - "My (de)Generation"

All the best. Steve

Nely said...

Espero que tu libro pueda encontrarse en la web, me gustaría mucho poder disfrutar de él. Mis mejores deseos, seguramente harás un gran trabajo. Saludos atentos.

Peter Dunlap-Shohl said...

Gracias, Espero que si, un dia.

Peter Dunlap-Shohl said...

Steve, this is all your doing, or at least in part, thanks to your badgering. Well badgered, my friend.

John Vine said...

My name is John Vine. I have PD. For a book I am writing, I am trying to interview others who (like me) have PD and who (unlike me) do not live near a major medical center. I thought that this might be a good place to start. Please let me know if you can help me and are willing to do so.

Thanks in advance.

Peter Dunlap-Shohl said...

Hi john, that is a terrific idea for a book, let me know how I can help. I can certainly point you to some people who are far away from expert care.

Peter

Peter Dunlap-Shohl said...

John, Here is my email dunlapshohl(at)gmail.com